 |
| My Amazing 13 Year Old Son Who Teaches me Faith, Trust, and Hope! |
Ben has lived without many foods for much of his life do to a condition of his esophagus - eosinophilic esophagitis. Our entire family is healthier because of all I have had to learn through the course of Ben's life and his needs.
I received a call from the Dr on Friday that was not the news we were hoping for. Ben's stomach is the major concern as it is swollen and has the same cells that have existed in his esophagus that do not belong there. (his esophagus does look a tad better)
The Dr wants him to continue to live without the foods he currently cannot have but also wants him to live without wheat and egg or swallow a spray steroid twice a day.
The food elimination list looks like this: dairy, soy, nuts, all legumes (beans, peas, lentils), strawberries, melon, grapes, sesame seeds, carrots and now eggs and wheat.
The idea of going without his favorite foods is painful to his heart but the idea of going on steroids as he is in the midst of his growth spurt is painful too.
For me, I would LOVE to find a holistic way of healing Ben but also do not feel like going against the Dr's advice is even a choice. Ben's condition is rare and not one that I want to mess with.
To be honest another fear I have is my son getting angry with God for the life he has been given. My greatest fear is for my children to turn against God and walk in their own paths. I know the pain I have caused myself by choosing my way instead of His. The truth is, the fear could cause me to make my own bad choices. I stand in the truth of Him and know that "in all things God works for the good of those who love him, who have been called according to His purpose." (Rom 8:28)
This is the truth I am standing on!
God's got this! Ultimately Ben will be healthier.
We are grateful for our friends who are walking alongside us through this journey.
Ben went to his Bible, to the Lord in prayer, and his best friend, Aaron for prayer and wisdom - and then to us with his heart in words and tears.
Ben spoke His fear of how he was going to live life.
My words - one day at a time, one step at a time. We'll figure it out as we move forward. We just need to ask for God's wisdom as our wisdom is not enough.
My son teaches me what Faith, Hope, and Love really are!!!
Renee, I pray that God will 'unscramble these eggs' as Victor Marx says, and that in whatever way He chooses to do it, you will see His mercy and His love for Ben. And what a great testament to you and Ray that Ben looks to Jesus for comfort. I need to remember this when my own faith wavers.
ReplyDeleteThank you so much. Ben continues to inspire and show heroic qualities ;) He chooses to see the best of the situation and has his rally cap on! God is good - All the Time!!!
Delete